Thursday, March 8, 2018

Results came back....

Wednesday afternoon we received the phone call about Cydney's scans she had in Phoenix. The results were reassuring for now.  There was no change from the previous MRI, and the PET-CT was negative. There are some enhancements shown but unsure what they are exactly.   We will be going back for scans in six weeks.  

It was a weight lifted off our shoulders. Our worst fears were not confirmed, we can breathe a little easier for now.  There will be anxiety as more scans come up I'm certain. Treatments will continue as planned.  


Chemo Day: Cycle 4 Round 2

Receiving her Vincristine during Chemo infusion 

On the road to Phoenix for scans

In recovery at Phoenix Children's after her scans, waiting for anithesia to wear off and for her shunt to be reprogrammed before heading home 

H.O.P.E Presentation & Monkey in My Chair

A week before Cydney started school we went in to meet the students and to sit in on the H.O.P.E. presentation to the entire Third Grade. The program addresses the issue of childhood cancer; through facts of the realities of cancer, and preparing the classmates with strategies for a successful transition in Cydneys return. 

After the H.O.P.E. presentation was complete the Child Life Specialist and Educational Specialist from Banner University talked with the class more specifically about Cyndey, the procedures she has gone through and what treatments look like for her.  They used dolls and stuffed animals to show them a Port and Mic-key button, explaining their functions. Discussed proper hand washing, wearing of masks when needed and sanitizing of the classroom. All important to help Cydney be able to come into class and lessen her possibility of catching a cold or other illness. We discussed her emotions and her tendency to get upset quickly and easily. We discussed ways to help her calmly explain what she is needing and the importance to give her space when she requests. 

They then presented the Monkey in my Chair. The monkey is a representration of Cydney on days she is not in school. The class can take the monkey with them throughout the day to different classes documenting the day to day activities.


Cydney named the monkey Cydney


Back to School
This week Cydney went back to school.  There was a lot of excitement for everyone.  The classmates are eager to help her anyway they can, and have been very encouraging of her as she adjust to the classroom setting.

She is attending two hours on Wednesdays and Thursdays each week.  Her days consist of some classroom time, therapies and recess. She does get very tired by the end of the two hours. It is a lot of activity to take in and can be overwhelming at times. The school has been very supportive and accommodating to her needs. Giving her a place to have quiet time when needed, time to transition from one activity to next and helping her express her needs as far as the amount of help she wants from her classmates. 

I am attending with her and slowly keeping my distance as people learn to communicate with her and provide her the assistance she needs.  The therapist either work with her in the room or in their own classroom one on one. 

Once we leave she returns home for a nap before the homebound teacher arrives. 

Ready to head into the school

Working on her Art project

Made a clay cupcake

Working in Speech Therapy

Going for a walk with friends

Looking through drawings and cards made for her by friends

Working on fractions
Getting help from a friend with a fraction puzzle


Taking a tour of the classroom

Books donated to the classroom by H.O.P.E

                  Occupational Therapy



She has completed the 4th cycle of Chemotherapy. Next one begins on April 3rd.

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