Wednesday, February 21, 2018

Waiting......

We received phone calls from several doctors today after the Tumor board met in Phoenix.

They could not definitively say it was NOT a tumor, they would not say it IS. They would like to get more scans in several weeks in Phoenix on the PET CT machine. 

The doctors have also suggested a Lumbar puncture, to detect any cancerous cells in the CSF.  In order to do this they would like to wait for this cycle of Chemotherapy to be over. They are concerned of Cydney's counts being too low. We expressed our desire to have the scans earlier and if a Lumbar puncture would hold the scans up to forgo that for now and get a scan done. 

Getting another look to either confirm or deny a tumor is obviously the most important to us. If the scans confirm a tumor we need to look at the course of treatment she is currently undergoing and discusses changes needed. We have asked to have scans done as soon as possible. 

So many questions! What other protocols are there, would another surgery be needed, could a shunt tap show us the same as a Lumbar puncture. The neuro-oncologist implied he had not seen a case of a tumor returning to the focal site this early into treatment in his 30 years of work.

For now we wait some more. Wait for scans to be scheduled, hopefully sooner rather than later.  Wait with hopes it is still nothing concerning and we can continue with the treatment plan we have. 


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