Cycle 8 is done!

Cydney has completed the 8th cycle of chemo. This one was her last "A" Cycle. She spent one night in the hospital for the first week of the round, July 24-25. She got infusions of Cisplatin, Vincristine and Lomustine (CCNU). Went back to the clinic on the 26th for a Neulasta shot to help boost her immune system and keep infections away. The following week July 31 we went into the clinic for a Vincristine infusion. This time only in the clinic for a few hours and were able to go home that afternoon. Today, August 7 she went in for her last infusion of this cycle. Again, only a few hours spent in the clinic for Vincristine and we were home by 2pm.

She has become very anxious about the port access and knows it is coming! This is not a fun part of the day. There is no activity, show, song or discussion that can provide a distraction. As soon as the port is accessed it is all smiles again and goofing around like nothing just happened. We hold hands and grit our teeth to get through. There are tears and pleading to not give her a shot, and a lot of reassuring the hard part is over quickly.

We saw one of our fellow medullo family/friends there today and talked for a bit about each others progress, setbacks, and similar reactions to the whole process. There is a bit of comfort talking to others going through the same things, someone who truly understands!

Now Cydney gets a three week break before she begins the next and final cycle! September 11th is the day circled on the calendar as her final treatment day. As long as her counts can stay up and she can stay on track she will finish on time.

Waiting for her turn to start Chemo

Waiting for counts to come back from Lab, so we can be admitted and go upstairs to begin Chemo. 

Napping while she gets fluids before beginning Chemo for inpatient stay. 

Visit from Merida!! 

Getting glasses:

Pima Air and Space Museum:

Receiving Chemo in clinic, July 31 2018

First Day of School:

Meet the Teacher Day

Happy  9th Birthday Cydney!!

                                                       

Sign made for Cydney by a friend in OK. Thank you Emily! 

This summer has been filled with a lot of swimming. Both Cydney and Nathan have made a lot of progress in their swimming abilities over the season. Spending almost everyday in the pool has allowed them to work on the skills and become comfortable in the water. Lily is also a fan of the water and enjoys playing in the pool. 

We are looking forward to getting the school year underway and adjust our routine again to fit in therapies, doctors appointments, Nathans school schedule, school days for Cydney and other after school activities for both Cydney and Nathan. Cydney will be attending school three days a week for two hours each day. As she finishes up treatment and is able to have the energy to go longer we will extend her days and time as appropriate. While in school she will receive all three disciplines of therapies, classroom time and eventually adaptive PE. She has an aide with her throughout the day to help when needed. Cydney loves being back at school and among her friends.

We thank everyone who continues to send positive thoughts, prayers, words of encouragement and support!