The first two weeks she was back in school I attended with her, taking her from class to class; with the Special Education teacher coming with us to get to know Cydney. We then had a meeting to talk about her needs, what comforts her when she gets upset, and how much to push her in preparation for me to step out of the room and let Cydney attend on her own. Last week she went on her own, with the Special Ed teacher and I waited in the car. This was hard for Cydney, she likes me to be close. I was nervous for her, hoping she did not get too upset and could enjoy her time in school. Both days went well and she did enjoy herself. She gets upset as she is taken back to class, but returns happy and excited to tell me what she had done that day. It reminds me of when she was 2 and going to day care. Every day I would return to pick her up and she would be so excited, running across the room with her arms held up saying "Mommy, you came back, you came back, I missed you!" She always had a big smile on her face and welcomed me with a huge hug and kiss. I would wrap her up in a hug and then we would walk out while she talked about all she had done.
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| "Crazy Hair Day" at school |
Cydney has started eating ice cream by mouth. This is a step forward as she has previously not liked the taste of anything. We are still trying other foods and textures, to which she declines after trying. She expresses wanting to not be tube fed anymore and is tired of having "pea soup" all the time. Her formula Nourish is referred to as Pea Soup. We still blend food for her as well. Until she can obtain the necessary calories by mouth, she will remain tube fed. Our goal, hope, is for her to eat by mouth and only need the tube as a supplement for when her appetite is low due to the chemo treatments.
Therapy continues to go well. Sessions have dropped down to twice a week at the Therapy center along with her two days at school she gets therapy. We work at home the days she does not go in for Therapy. Taking trips to the park, working on using her walker and wheelchair to get herself around, and playing with Nathan and Lily are also good ways for her to build up strength. She is able to stand for longer periods of time, is able to dress herself and is beginning to get the strength to crawl.
We still struggle with emotions. Keeping her from swinging to the extremes is difficult some days. It is worse when she is tired and has not gotten enough rest during the day.
Our newest family member Sonora:
The next round of chemo starts next week. This will be round 5 of 9. Another "A" cycle. Three treatments over the next three weeks before another three week break. We also go back to Phoenix for another MRI on the 26th of April. The MRI will be once again to look at the spot seen in February, checking for any changes.
Thank you for the thoughts, prayers and continual messages of encouragement sent our way.
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