She is Amazing!

For now we have won the nutrition battle. There does not seem to be a nutritionist who wants to work with us or has the time to talk with us about Cydney. So for now we have control of her feedings. The past three days she has been on bolus feeds and a overnight feed. She has tolerated it all well, without any issues.

Also in the last few days she has made some awesome improvements. Reaching up for Didgee, moving legs in and out on command, turning head side to side (giving us another way to communicate and get "yes"and "no" answers from her).

 Nathan and Lily went up to Phoenix for the weekend for a visit with Cydney. They all have fun being together.

Beads of Courage Program is a way for children to tell their story through colorful beads each representing each milestone of treatment. We are only at the beginning of Cydney's bead collection and working on stringing them together to display for her. Giving her a visual representation of the battle she is fighting and her strength which continues to impress us. It was nice to learn the program is local to Tucson and has a studio we can go to and make fun special pieces.

Everyday we look forward to what Cydney will do next. Waiting so impatiently for her all her  "second firsts" . Sitting up on her own, saying words, standing, walking, learning to eat again. Skills we may have taken for granted as she learned them as a baby. Knowing how precious those moments will be to see again brings tears to my eyes. She is amazing and working her hardest to regain these skills.